The Foundation’s National Volunteer Advocacy Committee provides guidance and support to further strengthen and enhance the ...

My evolving relationship with cystic fibrosis brings feelings of guilt and jealousy but also a deep sense of gratitude and understanding.

Being told it was time to consider a transplant came with thoughts of doubt and immense fear, as well as a few happier moments when I let my mind dream of the possibility of another chance at life.

Notice and comment process provides an invaluable platform for patients to share real world experiences, concerns, and implications of proposed rules issued by HHS.

In a letter to the U.S. Food and Drug Administration, the Cystic Fibrosis Foundation responded to the agency’s draft guidance entitled “Pulse Oximeters for Medical Purposes — Non-Clinical and Clinical ...

Waiting. It’s not just a verb — it’s a state of being, an emotional terrain, a test of patience and resilience. For those of us living with cystic fibrosis, waiting is woven into the fabric of our ...

On February 20, more than 150 advocates from across the country, including nearly 25 adults with cystic fibrosis, met with members of Congress and their staff during the Foundation’s 18th annual March ...

When I began my journey to earn my Doctor of Pharmacy degree, I knew the road ahead would be challenging. In fact, it was so challenging that I often sat there worrying and anxiously crying about ...

Randy was my fourth child, and we were extremely close. When he was a baby, he got very sick with spinal meningitis, which led to deafness in one ear. Despite surviving this, Randy faced various ...

I found myself crying, staring at my therapist sitting on the other end of Zoom. And it was not in a subtle sort of way where the tears prickle in the corner of your eyes, and you can sniffle your ...