What Is Hantavirus, the Rare Disease That Killed Betsy Arakawa?
Ms. Arakawa, the wife of the actor Gene Hackman, died from the effects of a disease often caused by contact with droppings ...
My son’s rare disease diagnosis spurred me to ditch Big Pharma for a biotech startup
Most individuals diagnosed with a rare disease won’t live to become teenagers or adults. I knew what I had to do.
Florida Politics1d
Adam Anderson’s ‘Sunshine Genetics Act’ advances, offering promise for rare disease research and treatment
Ensuring every newborn has access to life-saving screening and treatment is both a moral and economic imperative.' ...
Unlocking Answers: Transforming Rare Disease Diagnosis
Our goals are to expand access to genomic testing and develop cutting-edge genomic testing to help more families get answers ...
STAT13d
To fight for those with rare diseases, Trump must reform and modernize the FDA thoughtfully
With the right policies, advanced science, and strong leadership in government agencies, Donald Trump has the power to save ...
Primary school pupils brighten up Rare Disease Day with bold outfits
Pupils at Bridport Primary School put the spotlight on rare diseases by dressing in a riot of colour and learning about the challenges faced by those affected. As part of Rare Disease Day, children at ...
News On 62d
5 takeaways from Cherokee Nation Rare Disease Task Force report
Cherokee Nation Principal Chief Chuck Hoskin Jr signed an executive order in February 2024 establishing a Rare Disease Task ...
Metro East 6-year-old with rare disease is competing to win an adaptive bike
A rare disease has taken a piece of Aubrey's childhood away from her: the ability to ride a bike. But, a public vote could ...