The Foundation’s National Volunteer Advocacy Committee provides guidance and support to further strengthen and enhance the ...

My evolving relationship with cystic fibrosis brings feelings of guilt and jealousy but also a deep sense of gratitude and understanding.

Notice and comment process provides an invaluable platform for patients to share real world experiences, concerns, and implications of proposed rules issued by HHS. WASHINGTON, D.C. (March 6, 2025) — ...

Being told it was time to consider a transplant came with thoughts of doubt and immense fear, as well as a few happier moments when I let my mind dream of the possibility of another chance at life.

In a letter to the U.S. Food and Drug Administration, the Cystic Fibrosis Foundation responded to the agency’s draft guidance entitled “Pulse Oximeters for Medical Purposes — Non-Clinical and Clinical ...

Dear Chair Collins, Vice Chair Murray, Chair Cole, and Ranking Member DeLauro, On behalf of the undersigned organizations, we ask you to ensure robust appropriations for NIH in the remainder of fiscal ...

Dear Chairman Pena-Melnyk and Members of the Committee on Health and Government Operations: On behalf of the more than 570 people living with cystic fibrosis in Maryland, we write to express our ...

Cystic fibrosis is a progressive, genetic disease that affects the lungs, pancreas, and other organs. There are close to 40,000 children and adults living with cystic fibrosis in the United States — ...

Dear Chair Collins, Vice Chair Murray, Chair Cole, and Ranking Member DeLauro, On behalf of the undersigned organizations, we urge you to prioritize robust funding for the National Institutes of ...

Dear Chairman Beidle and Members of the Committee on Finance: On behalf of the more than 570 people living with cystic fibrosis in Maryland, we write to express our support for SB 773, which would ...